From a Room with a View….

My last blog asked everyone to join in our prayers of love and healing for Emma. What a beauty-full and serene energy filled her room and cradled her as you all sent your love… She was and still is ‘in the arms of Angels’.

Thankyou Dave Phillips for arranging that event – it was joined by many, many people around the globe. Emma is sooooo loved.

During that week Emma continued to have seizures and the medical teams around her became more and more baffled as they carried on ‘upping’ her medication. The seizures did abate but the hallucinations grew terrifying, which were brought on by the combination of medications (explained to me by a Devon doctor who was the third person called out during the night on Sunday 15th May)..

After a harrowing 48 hours of no sleep and Emma literally trying to crawl the walls to escape from the horrors that only she could see, the district nurse turned up and discussed with us about Emma going into St Luke’s Hospice here in Plymouth – just for a few days, to get her medication and hallucinations under control. Danni and I knew that Emma had begged us to never let her end up in a hospice, so we had a real dilemma. However, once Em had calmed down a little she agreed to go into the hospice ‘just for a few days!’ 

We arrived at St Luke’s Monday afternoon on 16th May. The staff were waiting to welcome Em and soon got her settled. Within 2 days the hallucinations had practically stopped, her medication is more balanced now and Emma is eating and drinking really well. She’s even been out in the wheelchair with Danni and Dave and had a tour of the hospice, inside and out! 

So, while I’ve been the silent sentinel by Emma’s side (I stayed here with her) I’ve been having a few conversations with the staff…. It seems that the day that the nursing care kicked in.. Was it only 2 weeks ago?!… It was documented that she was given 24 hours to live. The seizures were really bad, she couldn’t stop vomiting….

I am here to say that Emma most definitely hasn’t given up on life and living. She is determined to go home on Monday, and outwardly she is getting stronger by the day…

To me, this is yet another miracle in the string…. Here’s to many more! 

Much love

Sue X

6 thoughts on “From a Room with a View….

  1. Wanting you to know followed your perilous and very brave journey,where there’s life there’s hope .Here’s hoping all those fighting this battle along with all those family and friends find the strength to continue meanwhile we all pray for miracles because miracres happen .
    Much love xxx

    Liked by 1 person

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