The Latest Update…
On Friday 8th April, 2 months after being told that Emma had 1-2 months left to live, I rang the hospital to speak to her oncology nurse. I asked if it would be possible for Emma to have an MRI to check on the progress or possible regression of the cancer in her brain. The nurse said she would get back to me on Monday 11th April after speaking to Emma’s oncologist.
I received a call from the oncology nurse on Monday as promised. The answer from the oncologist was an emphatic NO!
The nurse then said “but she could come in for an appointment if she wants some treatment”.
Emma had already chosen not to have any more chemo after being told by the same oncologist, who was now offering it to her again, that it was the original chemo that had caused the cancer to migrate to her brain in the first place. Go figure?!
So I asked for some clarification:
“Are you saying that if Emma comes in for chemo she can have a scan?”
The nurse replied:
I then said, just to make it clear:
“So if she doesn’t have any more treatment, she can’t have any more scans?”
Again, the nurse replied:
That was the end of the conversation.
I have since rung the same nurse to ask for this information in writing, I am waiting to see if it will materialize.
I am also waiting to speak to our family GP to see if it’s possible to request an MRI through our surgery…
I have already looked at alternatives to check on the progress or regression of the cancer. I spoke to a Thermal Imaging Clinic here in the southwest of England, but their scans don’t work through the skull. 😦
If any of you know of alternative methods of tracking the cancer could you please let me know?
The only other current option is to raise money to pay for a private scan (£2,500). I know you have probably already paid into Emma’s fund if you are reading this – please know how grateful we are for every penny that has helped to maintain her presence in our lives, and also for helping us to create the memories that we have so far…..
As you will know yourselves, if you have danced with the Big C, or if you know of someone who has (let’s face it, who doesn’t know someone in this day and age?), following an alternative, natural route costs a lot of money.
You will also know that no cure is a cure-all for every type of cancer. So, just like you, we are testing out a few options. As my friend Louisa said in a recent post on Facebook, we are leaving no stone un-turned! This is a very accurate statement.
Who wouldn’t try everything that sounded feasible that already has good success rates, if they thought it might help save their child’s life?
And it all costs money….
So can I please ask, if everyone who reads this blog – over 5,000 people so far! – donates even £1, £5, £10 – whatever you can afford – we would easily be able to book a scan for Emma so that she can actually see what is happening.
I think this is currently the main incentive for me. Emma needs to actually see what is happening in her brain.
So, dear friends from wherever you live in our global family, please let’s show the system how Emma can get by with a little more help from you?
You will never know how much we appreciate what Emma has been able to achieve so far with your kindness. I personally, continue to be moved on a daily basis by this – as I know you do too from the many messages we receive…
We’ve already raised over £4,000 since the fund raising began in August 2015. That’s all down to you! Over 6,000 people have read about our campaign (via our GoFundMe page) for raising money to help Emma. That’s also down to you for sharing and caring 🙂
There is very little of the funding money left after the wonderful break in the forest and paying out for everything Emma needs to make her life just a little bit better each day over the last 8 months.
We need to find a way of monitoring Emma’s progress without putting her through chemo or radiation therapy again. YOU can help us to do that.
Thankyou, Thankyou, Thankyou!!!!
Sue Fraser (Praying for more wonder-filled days with Emma) Your Prayers Love and Healing are also very much needed and gratefully received!!!