The next steps….
Sooooo, on Monday 8th February 2016 at 9.45 am Emma had an appointment at the Royal Eye Infirmary in Plymouth. This was after a routine eye test for new glasses as she had been experiencing some problems with headaches and blurred vision since around Christmas..
I am so grateful to the optician at Specsavers who saw Emma, for referring her as quickly as she did to the Royal Eye Infirmary.
Previous to this, Emma had been for a scan on 15th January (6 months after her last one). She wanted one 3 months earlier just to put her mind at rest, but her oncologist insisted that she left it 6 months. Her next routine visit to her oncologist would have been on 11th February, almost a month after the scan. We tried to make it earlier because Emma was having headaches etc., but he insisted on leaving it until the 11th.
Back to the appointment at the REI: The consultant explained there was something between the back of the eyes and the end of the optic nerve and he wanted Emma to have an emergency MRI. He booked her in straight away and asked us to wait around for a phone call.
Whilst we were waiting for the call we went to the oncology unit to see if we could have a chat with Emma’s oncology nurse. She was available so they allowed us to see her and then Emma’s oncologist popped in to see us too. We explained what the eye consultant had asked us to tell him and he said he also thought Emma should have an urgent MRI because it looked to him as if she might have Meningitis. He told us to go to A&E and get her admitted as she would have to stay overnight to have all the tests. Emma’s oncology nurse did stop us as we left though and said that the good thing was that the cancer in her body was unchanged. It hadn’t gone anywhere else…..
We did as we were advised and at 8pm Emma eventually got the MRI. In a very short time a doctor came to see her and said the news wasn’t good. It wasn’t Meningitis, but Emma did have a lot of cancer spread around her brain….
Danni and I were with Emma when she received the news. As anyone with a child can understand, we were all devastated and I think all 3 of us went into a state of shock.
Personally, I couldn’t understand how this could happen when the rest of the cancer throughout the body was practically gone?! And…. how could the nurse have told us only a few hours before that the cancer hadn’t spread anywhere else?!
Why hadn’t anyone been checking her head????
So, Emma was admitted and put on steroids to bring down the inflammation because it was causing so much pressure and affecting lots of things in her body. I sat next to her all night and was amazed at her reaction. She became very calm and accepting of the situation.
We had to wait until the following lunch time for her oncologist to visit us on the ward. He informed us that the news wasn’t good. He also said that the trial chemo that she was blasted with originally had been too drastic and that’s what had caused the cancer to migrate to her brain.
I asked how long he thought she had and he said about 1 or 2 months. OMG!!!
He then said she needed radiation to blast holes in her blood/brain barrier so they could get chemo through it??
Emma immediately said ‘NO!, why would I want more chemo when you just told me that’s what caused the cancer to grow in my brain in the first place?’ He got quite frustrated and left her to make up her mind and asked us to go and see him on Friday with our decision.
We were left to rage and weep at this news. How can this be possible?
That same day Emma’s friend came to visit her in hospital. She had been researching the original trial chemo; she found that 5% of patients having this particular treatment ended up with brain cancer. Why hadn’t anyone been monitoring Emma’s brain when 5 out of every 100 people ended up with this? Emma’s oncologist obviously hadn’t because he told us the day before that Emma’s situation was unchanged…..Her head had not been scanned.
How is Emma dealing with this?
Emma is coping really well… She’s made friends with her new cancer and has called it ‘Squish’. We’re now learning to dance with Squish…
Changing the Steps
So what now?
I stayed awake most of the night while Emma was in hospital looking up info on natural treatments for brain cancer.
Apparently, treatment that works on the body may not work on the brain because of the Blood Brain Barrier (BBB). I had no idea about this…..
Although, I had already been reading about the effectiveness of the Essential Oil Frankincense and its ability to enter the BBB. I had even ordered a 50 ml bottle of this only a week or two previously. Maybe my intuition had already kicked in??
How does it work?
I’m still researching it but I will write more when I have the information. At the moment Emma is taking 3 drops morning and night on her tongue and holding it on the roof of her mouth for a few minutes.
“New research, like the University of Leicester study, has recently suggested that frankincense’s disease-targeting power may be even more encompassing than previously suspected. Successfully linking AKBA as a potential treatment for brain, breast, colon, pancreatic, prostate and stomach cancers, research trials are filling medical journals like Carcinogenesis and PLoS One about boswellia serrata’s cancer-targeting prowess. (2, 3)
According to researchers out of Baylor University Medical Center in Dallas, the potential cancer-killing properties of frankincense are due in part to it regulating cellular epigenetic machinery, which highlights its ability to influence genes to promote healing.
Baylor cancer scientists emphasize that this potency makes Boswellia a viable candidate for both cancer prevention and treatment.”
The Budwig Diet
I have also been researching the Budwig Protocol. Today I received the book ‘A Day in the Budwig Diet’. I’m in the process of making sense out of it so that we can use it practically every day.
Scalar Wave Laser
A wonderful friend has loaned us a ‘magic wand’ as she calls it. I have to say this laser is already making us feel goooood!
Emma’s Wish to Make Memories
I believe that we can learn this new dance and find a way to bring Emma’s body back into balance and make ‘Squish’ happy…. However, we have to be realistic and put things in place in case we simply don’t get to learn it.
Emma has expressed a wish to make some lovely memories with her children and family. We’ve set up a GoFundMe page to help raise funds to do this and to help fund the treatments we are trying. If you would like to read more and help us to make Emma’s wishes come true or if you can help us in any other way please donate using the link or contact us here.
Thankyou, Thankyou, Thankyou!!!
We are all, as a family, amazed at the generosity of people so far. From the bottom of our hearts Thankyou so much!!!!